FOR THOSE IN PAIN -- HOPE, INFORMATION AND SUPPORT!
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When I began having chronic pain there did not seem to be much known about chronic pain as a whole, and worse yet, ways to treat someone suffering with it. Now, fortunately, chronic pain has evolved to where there are now physicians trained in an entirely separate medical specialty known as "PAIN MEDICINE" and a wide array of treatment options are now available. Much is being researched about the causes of chronic pain, as well as written. More and more physicians, as well as nurses, nurse-practitioners and others involved in patient care, are being educated and taught new ways to treat this difficult condition. There are many foundations, associations and other educational bodies available to both patients and the medical community devoted to chronic pain!

There are different types of medication available to treat chronic pain -- analgesics, antidepressants, and anticonvulsives are a few. Spinal cord stimulation, intrathecal drug delivery systems -- such as the pain pump, as well as biofeedback, meditation, and hypnosis are also some ways in which pain is now being treated. YOU should decide with your physician which ways are appropriate for you. It is important that chronic pain patients find a physician knowledgeable in the field of chronic pain and someone they trust, someone that will be an advocate for that patient. An article published in the JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION recently stated that "studies carried out during the last 25 years have documented the undertreatment of both acute and chronic pain. Unrelieved pain has profound physiological and psychological consequences that result in significant costs to patients and families, to the health care system, and to society as a whole.."

In an article I read on the Partners Against Pain website, it was stated that "a recent survey confirms what health professionals know: lots of Americans are missing work and missing out on life because of pain. The Michigan Pain Study polled a sample of 1,500 adults in Michigan about the severity of their pain, its treatment and its impact on their lives. The poll was conducted by the public opinion firm EPIC/MRA and sponsored by the Pain Education Fund of Chelsea (Michigan) Community Hospital.

By generalizing from the sample, the poll estimated that 1.2 million residents of Michigan suffer from chronic pain -- about one in five adults.

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Of this group, 42% reported that their pain has affected personal and work relationships. Thirty-five percent missed more than 20 days of work and 21% went to the emergency room for pain in the past year. A full 70% said they are still experiencing pain despite treatment. These results show that chronic pain has far-reaching effects on family and economic life. Says EPIC/MCA pollster Ed Sarplous:
"Pain is a major health problem, not only for those who directly suffer from it, but for everyone in Michigan. The costs to society are real, in the form of lost productivity, repeat hospital visits, and ineffective treatment. In addition, the situation is denying people and their families basic quality of life."


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COURTESY OF SPINE UNIVERSE.COM
Finding the proper diagnosis is often work of team of medical professionals.

Courtesy Spine Universe.com

There are a number of steps in getting the pain relief that is right for you.  While some therapies may control pain for some people, others may need different or more powerful therapies to control their pain.  The choice of treatment depends on the type of pain, how severe it is, and how you respond to your pain therapy.  The chart above lists therapies your doctors may consider when treating your chronic pain. (FROM SPINE UNIVERSE.COM) 

Pain Management itself is such a world issue now.  The International Association for the Study of Pain has published a list of upcoming meetings about pain and it encompasses the entire globe.  If you want to link on to it you should go to:
 

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LISTED BELOW ARE LINKS TO MANY OF THE FOUNDATIONS, ASSOCIATIONS, EDUCATIONAL JOURNALS, WEBSITES, SUPPORT GROUPS AND ARTICLES THAT CAN BENEFIT ANYONE SUFFERING FROM CHRONIC PAIN, THEIR FAMILIES AND FRIENDS, AS WELL AS BOOKS AVAILABLE.  I HAVE TRIED TO ORGANIZE THESE LINKS AS MUCH AS POSSIBLE AND HOPE YOU WILL FIND THEM HELPFUL AND WORTHWHILE TO YOU AND YOUR FAMILY.  CHECK BACK OFTEN AS I AM ALWAYS UPDATING!!!!!

Last Updated:  June 15, 2001

APRIL 26, 2004

ACADEMIC INSTITUTIONS

Fibromyalgia Research Center at the University of Washington Medical Center--what is fibromyalgia; symptoms, treatments, their research program, who is eligible to participate in research program.

PAIN & POLICY STUDIES GROUP OF THE UNIVERSITY OF WISCONSIN

The Stanford Patient Education Research Center at the Stanford University School of Medicine (EXCELLENT SITE)

UCLA CENTER FOR THE INTERDISCIPLINARY STUDY AND TREATMENT OF PAIN

2ND UCLA HISTORY OF PAIN SYMPOSIUM -- AUGUST 2002 -- LOUISE M. DARLING BIOMEDICAL LIBRARY

ARTICLES

"ONE MORE STEP FORWARD IN TREATING OSTEOPOROSIS" -- HOPKINS MEDICAL NEWS, 2002

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This picture was done by a victim of migraine headaches -- entitled "Loneliness, Pain and Tears"

"CHRONIC MIGRAINE LINKED TO HYPOTHALAMIC HORMONAL DYSFUNCTION" -- ORIGINALLY PUBLISHED BY REUTERS HEALTH JANUARY 1, 2002

The National Institute of Neurological Disorders and Stroke Chronic Pain Information Page

"Managing Depression: While Chronic Pain and Depression Can Go Hand in Hand, They Don't Have To" -- by Kathleen Crowley -- National Chronic Pain Outreach Association and author of "The Day Room, A Memoir of Madness and Mending" -- writes from her own experience with chronic pain, pain clinics and depression.

"GENDER ROLE EXPECTATIONS OF PAIN: RELATIONSHIP TO SEX DIFFERENCES IN PAIN" -- The Journal of Pain, Volume 2, Number 5, October, 2001

"PERCEIVED SPOUSE RESPONSIVENESS TO CHRONIC PAIN" -- The Journal of Pain, Volume 2, Number 5, October, 2001

"Drug Enforcement Administration, 21 Health Groups Call for Balanced Policy on Prescription Pain Medications Like Oxycontin -- Goal is to Protect Legitimate Use of Prescription Drugs for Patients in Pain"

"MANAGING PAIN: WHAT'S NEXT, WHAT WORKS -- Laughter, Targeted Exercise, Pre-emptive Strikes Stop Pain in Its Tracks" by Jennifer Warner, published by WebMD Medical News February 22, 2002

"WHEN IT HURTS, GENDER MATTERS" -- written by Joanie Stewart and published by WebMD Medical News February 18, 2002

"PAIN RESEARCH COMES INTO ITS OWN" by Jennifer Fisher Wilson -- originally published in The Scientist, vol. 15 #21, October 29, 2001 -- (what I found notable in this article is that investigations are becoming more prominent in just HOW immediate pain becomes chronic pain -- changes beginning in the nervous system that trigger a switch. A University of California-San Francisco researcher, David Julius, says that "this switch in the central nervous system is clearly a very important component of chronic pain development.")

"PAIN, PAIN, FLOAT AWAY -- For people who suffer from chronic pain, meditation may be the first step to recovery" -- written by Karen Hopkin, PhD and published in WebMD Medical News October 9, 2001

Artificial Spinal Disc Offers New Hope to Patients With Degenerative Disc Disease published by Neurosurgery://On-Call September 26, 2000

Herniated Disc Fact Sheet -- published by Neurosurgery://On-Call January 2000

"Perspectives in Intractable Pain Management--An analysis of current diverging viewpoints" -- The National Foundation for the Treatment of Pain

"RSD--SYMPATHETIC DYSTROPHIES AND MYSTERIES" BY DR. J.C.D. WELLS PUBLISHED ON THE PAIN WEB

"Botulinum Toxin Injections May Ease Low Back Pain" -- published May 21 2001 by InteliHealth

"Researchers Identify New Mechanism Underlying Pain" -- article published by Pain.com

"FIBROMYALGIA -- A USERS GUIDE"

"What is Peripheral Neuropathy?" -- a guide by MayoClinic.com

"What is Back Pain?" -- a guide by MayoClinic.com -- causes, complications, diagnosis, treatment, prevention, self-care.

American Medical Association -- Report 11 of the Council on Scientific Affairs -- "Use of Opioids in Chronic Noncancer Pain"

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"COPING WITH THE STRESS OF CHRONIC ILLNESS" -- WRITTEN BY GRETCHEN MALIK AND PUBLISHED ON SUITE 101.COM

"AMERICAN PAIN SOCIETY URGES CONGRESS TO PRESERVE PATIENT ACCESS TO PAIN MEDICATIONS" -- PUBLISHED ON AMERICAN PAIN SOCIETY WEBSITE, DECEMBER 11, 2002

FOUNDATIONS, NATIONAL GROUPS AND ASSOCIATIONS

AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION --

THE AMERICAN CHRONIC PAIN ASSOCIATION

AMERICAN PAIN FOUNDATION

AMERICAN PAIN SOCIETY

AMERICAN ACADEMY OF PAIN MANAGEMENT

AMERICAN ACADEMY OF PAIN MEDICINE

AMERICAN HEADACHE SOCIETY

AMERICAN SOCIETY OF LAW, MEDICINE & ETHICS

AMERICAN SOCIETY OF PAIN MANAGEMENT NURSES

ARTHRITIS FOUNDATION

THE NATIONAL FOUNDATION FOR THE TREATMENT OF PAIN

NATIONAL HEADACHE FOUNDATION

NATIONAL MIGRAINE ASSOCIATION SITE -- AN UNDERSTANDING FOR MIGRAINEURS" -- GROUP PAGE

NATIONAL OSTEOPOROSIS FOUNDATION

THE NATIONAL PAIN FOUNDATION

THE NEUROPATHY ASSOCIATION -- thorough and extensive educational site

AMERICAN ACADEMY OF CRANIOFACIAL PAIN -- focus on the diagnosis and treatment of TMJ

THE DONAGHUE CONNECTICUT-WIDE STATE PAIN INITIATIVE (THE PATRICK AND CATHERINE WELDON DONAGHUE MEDICAL RESEARCH FOUNDATION/ASLME)

INTERNATIONAL FOUNDATIONS, GROUPS AND ASSOCIATIONS

INTERNATIONAL ASSOCIATION FOR THE STUDY OF PAIN

INTERNATIONAL CENTER FOR THE CONTROL OF PAIN IN CHILDREN AND ADULTS -- SPONSORED BY THE UNIVERSITY OF IOWA

NORTH AMERICAN CHRONIC PAIN ASSOCIATION OF CANADA --NACPAC -- in English and French -- for Canadians, there is a directory of Canadian Pain Clinics and Specialists by province. Educational material and related associations.

WORLD INSTITUTE OF PAIN

SUPPORT GROUPS

FRIENDS HEALTH CONNECTION--GENERAL SUPPORT GROUP FOR ANYONE FACING A HEALTH CHALLENGE

REFLEX SYMPATHETIC DYSTROPHY-UK ONLINE SUPPORT GROUP

CHRONIC PAIN MESSAGE BOARD/SUPPORT GROUP -- PROVIDED BY IVILLAGE.COM AND ALLHEALTH.COM -- this link will take you DIRECTLY to the CHRONIC PAIN Board!!

CHRONIC PAIN SUPPORT GROUP -- this is a terrific support group and network of chronic pain sufferers!

PAIN CONCERN -- provides information and advice for pain sufferers in the United Kingdom and Europe. Includes articles and leaflets published by the UK charity, Pain Concern, as well as a Q&A section, Book Reviews and links.

ARTICLES

"ANALGESIC TOLERANCE TO OPIOIDS" -- PUBLISHED IN DECEMBER 2001 BY INTERNATIONAL ASSOCIATION FOR THE STUDY OF PAIN

"S. 1024 -- CONQUERING PAIN ACT OF 2001" -- (INTRODUCED IN THE SENATE JUNE 13, 2001 BY SENATOR RON WYDEN

"ETHNICITY AND PAIN" -- PUBLISHED BY THE INTERNATIONAL ASSOCIATION FOR THE STUDY OF PAIN -- NOVEMBER 2001

POSTGRADUATE MEDICINE -- "NEUROPATHIC PAIN" -- NOVEMBER 1999

"Use Good Body Mechanics To Help Keep Your Spine Safe" published on SpineUniverse.com by Steven R. Garfin, M.D., Professor and Chairman, Department of Orthopaedics, University of California, San Diego, CA.

"Battling Back: Overcoming the Undertreatment of Chronic Pain" -- published by WebMD. Dr. Elliot Krames, the organizer of the Worldwide Pain Conference and a leading international pain management specialist, answers questions about the use of implanted medical devices such as neurostimulators and drug pumps to treat chronic pain.

"EMAIL DISCUSSION GROUP HELPS BACK PAIN PATIENTS" -- ARTICLE DATED APRIL 10, 2002

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A NORMAL SPINE

Picture of a normal spine (above) and a spine with spinal stenosis (below). Symptoms of spinal stenosis may be similar to those of more common leg or back problems but tend to be worse with walking or even standing. They may progress to include numbness and weakness in the legs and disturbances in bladder and bowel control. The diagnosis may be more difficult to obtain and require images obtained by CT or CAT Scans, magnetic resonance imaging (MRI) or after a dye injection (myelogram).

SPINAL STENOSIS

Getting Ready For Surgery -- a guide!

"Preparing for Spine Surgery" -- by Christy Baldus, RN, BSN, Orthopaedic Surgery, Washington University Medical Center -- this includes sections on: Chapter 1: Before Your Surgery; Chapter 2: Immediately After Surgery; Chapter 3: Recovering from Surgery/Exercise & Activities; Chapter 4: Recovering from Surgery -- discharge instructions for anterior cervical fusions with instrumentation; discharge instructions for cervical fusion; collar care instructions for cervical fusions; discharge instructions for anterior and posterior cervical fusion with halo placement; discharge instructions for lumbar fusion surgery/anterior, posterior; discharge instructions for lumbar laminectomies/discectomies microendoscopy; discharge instructions vertebroplasty.

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THE ABOVE PICTURE IS A POST-OPERATIVE XRAY OF A SPINE AFTER INSERTION OF INSTRUMENTATION OR HARDWARE (RODS AND SCREWS).

Pain Management: The Benefits and Risks of Opioids by Michael Clark, M.D.,M.P.H., Johns Hopkins Arthritis Center website

"THE FUTURE: WILL PAIN BE ABOLISHED OR JUST PAIN SPECIALISTS?" -- PUBLISHED BY THE INTERNATIONAL ASSOCIATION FOR THE STUDY OF PAIN IN DECEMBER 2000

"CHRONIC PAIN CAN BE MANAGED" -- PUBLISHED BY EMOTIONAL WELLNESS MATTERS FEBRUARY 2002

"OXYCONTIN PROBLEM -- NOT THAT COMPLICATED" -- THE LAW ENFORCEMENT ISSUE SHOULD NOT DRIVE MEDICAL POLICY TOWARD THOSE IN PAIN -- PUBLISHED IN HEADACHES ABOUT.COM APRIL 2002

"GENERAL PRACTITIONERS UNDERESTIMATE INTENSITY OF PATIENTS' SEVERE PAIN" -- ORIGINALLY PUBLISHED BY REUTERS HEALTH, JANUARY 7, 2002

"SCIENTISTS FIND KEY PAIN PROTEIN -- STUDY" -- BY GENE EMERY, ORIGINALLY PUBLISHED BY REUTERS HEALTH, JANUARY 10, 2002

EDUCATION -- PAIN MANAGEMENT

OUTLINE CURRICULUM ON PAIN FOR MEDICAL SCHOOLS -- BY THE INTERNATIONAL ASSOCIATION FOR THE STUDY OF PAIN

STRESS AND PAIN MANAGEMENT EDUCATION -- website by Jon Seskevich, RN,BSN,BA,CHTP -- specializes in stress, pain and palliative care with the Duke University Health System in Durham, N.C. On this website he offers experience, strength and hope for coping with stress, illness and pain!

WEBSITES

THE CIRCLE OF FRIENDS WITH ARACHNOIDITIS -- EXCELLENT SITE!!!

LOW BACK PAIN.COM

http://www.musculoskeletalpaininstitute.com
The Musculoskeletal Pain Institute -- part of the Dannemiller Memorial Educational Foundation

OSTEOPOROSIS ONLINE

PAIN.COM

OUR CHRONIC PAIN MISSION-- excellent site!!!!!

JAMA MIGRAINE INFORMATION CENTER, The Journal of the American Medical Association

PARTNERS AGAINST PAIN--"Your Around-The-Clock Resource For Pain Management" -- also excellent!!

PAINCARE.NET -- an interactive online resource dedicated to helping people with headache and other chronic pain conditions.

PAIN CENTRAL.COM -- support site for chronic pain sufferers and their families!!

PAIN CONNECTION

PAINLAB.COM -- providing pain management through information. FAQs, Management, Surgery, Chronic Pain, Pain Management

PAIN MANAGEMENT ONLINE

PAIN NET, INC. -- provides educational and support services to physicians and other health care professionals throughout the nation.

PAIN ONLINE--doctor's corner, information for patients, introduction to central pain syndrome, site map, about PainOnline, Glossary, Email!

STOP PAIN.ORG -- Department of Pain Medicine and Palliative Care at Beth Israel Medical Center --this is a site designed primarily for professionals in the field of pain management. Available here is a series of Power Point slides and notes prepared by pain professionals from various academic institutions and hospitals on every facet of Pain Management. As a person who has suffered from chronic pain for over two decades, I also found these slides and presentations very educational and useful in my quest for understanding chronic pain. Others in pain may also find this overall Site highly educational and worth a visit!!!

ED'S CHRONIC PAIN SITE

THE BACK PAIN CENTER AT WEBMD

SPINE UNIVERSE.COM

SPINE HEALTH.COM

SPINE UNIVERSE.COM -- a terrific website with patient guides to conditions ranging from ankylosing spondylitis to whiplash and everything in between!

CHRONIC PAIN AND THE CYCLE OF CHANGES IT CAUSES IN THE BODY!

The chart above was recently published on SpineUniverse.com and it explains the vicious cycle of emotional and physical changes the body goes through due to chronic pain.

#1: Nervous System Changes
#2: Tensed Muscles
#3: Mental Stress
#4: Depression
#5: Disturbed Sleep
#6: Guarded Posture

INTERNATIONAL WEBSITES

BACK CARE.ORG -- THE NATIONAL ORGANIZATION FOR HEALTHY BACKS (UK WEBSITE)

PAIN AWARENESS IN NOVA SCOTIA (PAINS) -- about completely ordinary people who find themselves called upon to achieve extraordinary acts of courage, in the face of chronic intractable illnesses. On links page, you will find everything you need to pursue an investigation on your own; to discover what these disorders are, some of stigmas and misconceptions about painful illnesses, treatment options available and where these treatment options are. Halifax, Canada, North America

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The Pain Research Institute

PAIN RESEARCH INSTITUTE -- Department of Neurological Science, the University of Liverpool, United Kingdom -- backache is the most common form of chronic pain occurring in the British Isles according to this institute. It is responsible for the loss of 13 million working days every year!!

SCOTTISH NETWORK FOR CHRONIC PAIN RESEARCH-- 1. compiles information on the extent of chronic pain and costs, across all of Scotland. 2. explores optimal ways of living with pain. 3. develops research program to evaluate clinical and cost effectiveness of pain assessment, treatment and management strategies. 4. education and training programs, as well as consultation services.

PAIN ONLINE (IN GERMAN)

THE PAIN WEB--a UK-based site for health professionals dealing in research, assessment and treatment of pain.

MEDIA AND JOURNALS

"WHO CARES: CHRONIC ILLNESS IN AMERICA" -- PBS Television Special -- accompanying website includes stations and showtimes, discussion guide, patient stories, and more!!!!--EXCELLENT!!!!

AMERICAN JOURNAL OF PAIN MANAGEMENT

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THE JOURNAL OF PAIN -- OFFICIAL JOURNAL OF THE AMERICAN PAIN SOCIETY

JOURNAL (IN RUSSIAN) -- PAIN AND ITS TREATMENT

JOURNAL - "PAIN REVIEWS" -- PAIN REVIEWS IS THE ONLY EUROPEAN JOURNAL TO PROVIDE A MULTIDISCIPLINARY REVIEW OF THE LITERATURE IN PAIN. BRINGS TOGETHER BASIC SCIENCE AND CLINICAL MEDICINE IN COMPLIMENTARY PAIRED ARTICLES.

"PAIN, THE DISEASE" -- By Melanie Thernstrom -- Originally published in the New York Times Magazine, December 16, 2001--(EXCELLENT ARTICLE!!!!!!!)

U.S. NEWS & WORLD REPORT COVER STORY ON PAIN -- PUBLISHED JUNE 12, 2000

U.S. NEWS & WORLD REPORT COVER STORY ON PAIN -- PUBLISHED JUNE 12, 2000!

"YOUR ACHING BACK" -- ARTICLE PUBLISHED --U.S. NEWS & WORLD REPORT, OCTOBER 11, 1999

NEWSLETTER "CHRONIC PAIN SOLUTIONS" -- you can subscribe to; also other info and resources

CHRONIC PAIN SUPPORT GROUP NEWSLETTER -- subscribe!

PROGRESS ON PAIN WRITERS PROJECT -- works with creative people in film and television to encourage accurate depiction of severe pain, it's consequences and modern pain management techniques.

BOOKS

MANAGING PAIN BEFORE IT MANAGES YOU -- BOOK

Written by Margaret A. Caudill, M.D., Ph.D.

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THE CHRONIC PAIN CONTROL WORKBOOK-- A Step-by-Step Guide for Coping With And Overcoming Pain, written by Ellen Mohr Catalano, MA and Kimeron N. Hardin, PhD (2nd Edition); AND Family Manual -- Developed by the American Chronic Pain Association (ACPA) -- to help families manage stress that arises when living with a family member who suffers from chronic pain.

"HANDBOOK FOR PAIN MANAGEMENT" --by Ruth R. Kingdon, Karen J. Stanley, Robert J. Kizior, Barbara N. Cullen -- $27.95 (Amazon.com) -- Amazon.com has extensive list of chronic pain books, with prices and ordering information

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BOOK: YOUR PAIN IS REAL:FREE YOURSELF FROM CHRONIC PAIN WITH BREAKTHROUGH MEDICAL DISCOVERIES BY EMILE HIESIGER, M.D. WITH KATHLEEN BRADY (this is not a link, but just information about the book--available at your local bookstore, through Barnes & Noble, or Amazon.com.)

FAMILY RESOURCE MANUAL -- OFFERED BY THE AMERICAN CHRONIC PAIN ASSOCIATION -- THIS MANUAL IS GUIDE FOR FAMILY MEMBERS TO HELP THEM MANAGE THE STRESS AND CHANGES THAT OFTEN ARISE WHEN LIVING WITH A FAMILY MEMBER WHO IS IN CHRONIC PAIN -- THIS LINK WILL TAKE YOU DIRECTLY TO THE AMERICAN CHRONIC PAIN ASSOCIATION SITE.

'PAIN MANAGEMENT' -- BY ANDREW VACHSS (book review) -- this is a work of fiction with a social message!! Book centers around a group of patients with MS. (available at any bookstore)

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